Tube feeding can be a very effective therapy for people with irritable bowl disease. It can heal intestine damage, reduce swelling, make symptoms improve, and help you gain weight and height.
Tube feeding is a treatment that involves taking some or all of your daily nutrition in a liquid formula. In other words, it’s a way of giving your body the nutrition it needs. The doctors decide how much formula you must consume to stay healthy. Partial enteral nutrition (PEN) means you consume 30-50% of your calories from formula. Exclusive enteral nutrition (EEN) means you receive all your calories from formula and do not eat regular meals. The formula enters your body through a tube, such as a nasogastric (NG) tube, which is a soft and flexible tube that goes from your nose into your stomach.

The tube is put in for the first time in the hospital, and this is where they teach you about what it is and how to continue them at home. Most kids say that having the tube put in is uncomfortable, but not painful. That uncomfy feeling starts to go away soon, too, as your body becomes used to having the tube there. It won’t be there forever.
A lot of kids wonder if they can eat or drink anything while on tube feeds. This depends on your specific treatment plan and how much of your total calories you are consuming via the tube. Even when you are receiving all your calories from the formula (EEN), you may still be allowed to drink clear fluids or even chew gum. Ask your dietician what’s allowed for you and your body before trying anything at home 🙂
Brief description of nutritional support & IBD: https://www.youtube.com/watch?v=6tbq_Lp7wnY
Getting an NG tube in: https://www.youtube.com/watch?v=M2bbyFFVtnc
Vlog from a teen girl about adjusting to life with a feeding tube: https://www.youtube.com/watch?v=ZUEL8yiEKEY
We are so glad you’re here. Upopolis is your private, secure space to connect with other youth who truly understand what it’s like to navigate healthcare journeys and life challenges.
When you first log in, you will land on your Newsfeed, which shows updates from your friends and the groups you belong to. To get everything feeling like home:
Don’t miss out on the fun! Invites and login details for our events are posted inside specific groups. Be sure to regularly check All Things Upopolis (for youth with a medical diagnosis), Grief Island, or YAP Island, as well as the News and Events page on Upopolis.com.
To explore and join more groups in main Upopolis, click the Group button at the top left of your screen.
Our communities are run by Certified Child Life Specialists: Jessica, Carley, Krista, Abby, Korin, and Vanessa. If you ever feel lost, have a question, or just need to talk, please reach out to any of them using the Message feature.
🎉 Have fun exploring, and welcome to the community!
Discussion (0)
There are no comments for this doc yet.
Comment posting has been disabled on this doc.