Author: Upopolis Team

1. Be kind to yourself, it’s normal to feel different emotions. Others in the group are
   probably feeling similarly, whether that is scared, excited, or nervous about joining for
   the first time. As research shows that nearly everyone feels nervous before starting
   something new.
2. You can always ask! Remember we are always available: If you are not sure if a
   program might be a good fit for you or have questions after registering, you can always
   email support@upopolis.com. They can answer any questions you may have, like what to
   expect, so you can feel ready.
3. Give yourself time to get used to it: If you are not ready to participate in a group, take
   the time you need to feel comfortable. Joining a group is an important step, and we want
   you to participate without stress.
4. Goal setting: Whether that means just listening for the first time, only saying your name,
   or speaking for a small part of an activity, setting small personal goals may be helpful.
5. Join our game nights! Participating in our monthly game nights can be a fun way to try
   out online programs and meet new people in a relaxed environment.

Getting started at Upopolis can feel like a big step! If you need time to adjust or try something
new, Upopolis will always be there to help you through it!
Remember these tips: ask questions, take your time and be kind to yourself, set small reachable
goals, and try a game night if you want to start slowly.

You can also check out these posts to learn more about what we do at Upopolis and hear what
past members have to say about their experiences!
“Upopolis has changed my life” – Jenna’s journey
Our youth members weigh in: 4 reasons why Upopolis is the place to be!
It’s important to remember that Upopolis is all about creating community, and how you take part
in that is always up to you!

Joining a group for the first time can be scary, especially for teens and young adults. You might wonder if you’ll fit in, who will join, and what will happen in the group. It’s very normal to feel
nervous about online programs if you’ve never tried it before!
At Upopolis, we use our groups and programs as a way to help youth meet others, make friends
with those “who get it”, and feel supported.
If you are feeling unsure about joining a group, the tips below may help!

Have you ever made plans and caught yourself thinking, “I hope I’ll feel up to it by the time this comes around”? Living with chronic illness can mean living with uncertainty. You might not know how your body will feel next week, or even by the end of the day. It’s completely normal if that uncertainty feels overwhelming, frustrating, or even scary at times. Let’s talk about ways to make those feelings more manageable.

When a lot is going on, it’s easy to get caught up in things outside our control. Sometimes, we need to slow down. Take a breath and re-evaluate where you want to focus your energy. Your locus of control might include following your treatment regimens, focusing on school or extracurriculars, communicating your needs, or resting when your body asks for it. You may not be able to control every symptom or variable, but you can control how you respond and how you move forward.

You could try:

Creating a diagram of your worries and dividing them into what you can and cannot control

Making a priority list of what matters most to you right now

Creating a plan to address what is within your control

Drawing a “choice map” to help you reflect on and work through stressors.

When your body changes, your plans might need to change too. Flexibility doesn’t mean you don’t care about spending time with others. Often, the hardest part of honouring your needs is the guilt that can come with it. Remember: no one can be perfectly available for everything. Being flexible with yourself means you are listening to

Consider:

Creating a Plan A, B, or even C based on how you might feel physically and emotionally

Grounding yourself in small, steady routines

Packing a “just-in-case” kit with items that help support you during unexpected moments

Plans shift. Unexpected things happen. That’s a normal part of life. We don’t need to solve tomorrow’s problems today, and we can’t predict exactly how everything will unfold. What we can do is celebrate our wins- even the small ones. You may not control every symptom or every set back, but you can choose your next step. And you can remind yourself, again and again:

You are allowed to build a life that works with your body, not against it.

By, Elysia, Upopolis Intern 2026

When your brother or sister has a medical condition or spends a lot of time in the hospital, it can change the way life feels in a big way. A lot of attention naturally goes toward the sibling who is sick, and even though that makes sense, it doesn’t mean you stop having needs or feelings of your own. Your life shifts too, and that deserves to be acknowledged.

You might feel worried about what’s happening, or confused because things at home don’t feel the same anymore. Maybe routines have changed, or your parents seem busier or more stressed than usual. Some siblings say they feel left out or invisible during this time. Others feel guilty—guilty for being healthy, for wanting things to go back to normal, or even for getting frustrated or annoyed.

Here’s something important to remember: all these feelings and more are normal. You’re allowed to feel upset, tired, proud, scared, or hopeful—sometimes all in the same day. Being a sibling in this situation takes strength, even if you don’t always feel strong. What you’re going through matters.

Talking about your feelings is one of the most helpful things you can do. A parent, a friend, a teacher, or a child life specialist can help you work through what’s on your mind. You don’t have to handle everything on your own.

It also helps to make space for yourself, even in small ways. Write down your thoughts, listen to music that calms you, step outside for some fresh air, or do something that makes you feel like you. Taking care of your mental and emotional health isn’t selfish—it’s necessary. You can care about your sibling while also caring about yourself.

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Here are some Coping Tips:

1. Your emotions are normal — even the messy ones.
• Name what you’re feeling.
• Journal, use a notes app, or record a voice memo.
• Make a “feelings playlist” to help you process emotions.

2. You deserve support — and it’s okay to ask for it.
• Check in weekly with a trusted adult.
• Tell someone when you just need them to listen.
• Write a note or text if talking feels hard.

3. Small self-care moments can help on tough days.
• Take a few slow, deep breaths.
• Do something that makes you feel like yourself.
• Spend 10 minutes on an activity that makes you feel calm and happy, like stretching, doodling, or playing a game.

4. You play an important role in your family.
• Set one small boundary for yourself each day.
• Remind yourself: “My needs are valid.”
• Make time for something unrelated to illness or hospital life.

You’re not “just a patient” — you’re part of your healthcare team. Doctors, nurses, and parents have expertise, but you’re the expert on you.

Teens want to have a voice in conversations about their body and healthcare journey. If you’re a youth who wants to feel more confident, informed and in control of your care, speaking up can help. Sharing how you feel with your healthcare team helps make sure your care fits you and your needs.

Your Voice is Important

• You deserve to understand what’s happening with your health.
  
• Doctors want your input, they can’t know what it feels like unless you tell them.
  
• Being involved builds trust and helps make care plans that work for you.
  
• You know yourself best, what feels right, what hurts, what’s scary, what helps and that’s all information your healthcare team needs.
  
• When you share your thoughts, it helps them make better plans with you, not for you.
  
• Speaking up helps you feel more in control, reduces stress, and makes sure your care matches what you actually need.
  

How to Prepare Before Your Appointment

• Ask to have a few minutes alone with your doctor if you’d like to talk privately.
  
•  Decide beforehand if bringing a friend, sibling, or parent would make you more comfortable.
  
• Keep a symptom journal or notes in your phone: “What hurts, when it happens, what helps.”It’s easier to explain how you feel when you have it written down.

• Write down 2–3 questions ahead of time (or use the notes app on your phone).
  

Asking Questions and Speaking Up

• “Can you explain that in a way I’ll understand?”
  
• “I’m nervous about ___ can we talk about it first?”
  
• “Can I have a few minutes to think before deciding?”
  
• “I want to know what my options are.”
  
• “What are the side effects of this medicine?”
  
• “Is there anything I can do at home to feel better?”

After your appointment

• Review what was discussed and make notes of things you don’t understand yet.
  
• Schedule a follow-up if you still have questions.
  
• Share updates with a parent, friend, or support person if it helps you remember important information.

Taking the lead in your healthcare doesn’t mean you have to do it perfectly. Even asking one question or sharing one concern is a big step toward feeling more in control and confident. You deserve to understand what’s happening with your body and to be part of every decision. Next time you have an appointment, try asking one question, big or small. That’s a step toward taking the lead in your care.

As we reach the end of the first month of school, it’s a great time to pause and check in with yourself. How are you coping so far?

The first month back often brings lots of change—new routines, new teachers, and sometimes even big transitions like figuring out how to balance schoolwork with an illness. That’s a lot to carry.

Taking a few minutes to reflect on your experience can really help. You might want to write your thoughts down in a journal or even share them with someone you trust.

Here are some questions to think about:

• What is something you thought would be challenging, but wasn’t?
  
• Who can you talk to about your illness?
  
• Who can you talk to when you are feeling sad, stressed, or anxious?
  
• What are you worried about moving forward? What can you do to cope with this feeling?
  
• What are three things you are proud of yourself for doing this month?
  

After reflecting, remember: it’s completely normal to feel stressed, upset, or worried. Navigating school while managing your health is hard—and it’s okay to admit that.

Here are some ways to cope with the challenges of balancing school and illness:

1. Talk to your teachers. Let them know if you need accommodations—like extra time on assignments due to an appointment or if you may need to leave class. Sharing your needs helps them support you.
2. Lean on friends you trust. A good support system can make a big difference. When friends understand what’s going on, they can support you in ways that really help.
3. Take breaks when you need to. School can be overwhelming, so give yourself permission to rest and do activities you enjoy.
4. Prioritize sleep. Rest is powerful—it boosts your mood, focus, and ability to handle tough situations.
5. Find an outlet. Whether it’s journaling, music, art, gaming, or fitness, having a way to express yourself can ease stress.
   

Most of all, remember: it’s okay to ask for help from friends, family, or loved ones. Your health and well-being is important!

Take a deep breath—you’ve got this.

If you’re a young person living with illness, social media can feel like both your best friend and your biggest challenge. On one hand, it helps you stay connected, distract yourself during tough times, and even find support from others who “get it.” But on the other hand, endless scrolling, comparing yourself to others, or receiving negative comments can take a toll on your mental health. This post is for you—youth who use social media and want to keep it a positive space while managing the challenges of illness.

Research shows that social media can boost connection and belonging when used in healthy ways, but too much time online can increase stress, anxiety, and feelings of isolation. It’s all about finding balance.

Here are a few ways you can set healthy boundaries online:

1. Limit your screen time.
It’s easy to lose track of time online. Try setting a timer or using built-in app limits to remind yourself to log off. Even short breaks give your mind and body a chance to rest.

2. Notice how you feel after scrolling.
Do you feel better, inspired, or connected after being online? Or do you feel drained, left out, or upset? Use those feelings as a signal for when it’s time to step back.

3. Choose who you follow wisely.
Fill your feed with accounts that make you feel supported, uplifted, or entertained in a positive way. It’s okay to unfollow or mute people if their posts leave you feeling worse about yourself.

4. Protect your privacy.
Sharing your story can be powerful, but remember—you get to decide what and how much to share. Keep your personal information safe, and only connect with people you trust.

5. Make space for offline joy.
Try swapping some screen time for activities that recharge you—like reading, listening to music, or spending time with friends and family in person. Balance helps you stay grounded.

Conclusion
Social media can be an amazing tool, especially when you’re going through challenges with your health. The key is to use it mindfully. By setting limits, paying attention to your feelings, and protecting your space online, you can make sure social media works for you—not against you.

If you want more tips on managing stress and staying connected, check out other Upopolis blog posts on [wellness and coping strategies]. And remember—Upopolis is a safe space designed just for youth like you, where you can connect, share, and belong.

So the next time you pick up your phone, ask yourself: “Will this scroll support me?” If the answer is yes, scroll on. If not, give yourself permission to step back—you deserve it.

Grief can feel heavy and confusing. When someone important to us dies, it can turn our world upside down. There’s no clear map for how to cope—but there are small things that can help. One of them is spending time in nature.

Being outside won’t take the pain away, but it can offer a quiet space to breathe, reflect, and feel a little more grounded. That’s why we’re inviting you to try something gentle and simple this week:

🌿 The Nature Colour Walk Challenge 🌿

What is it?
It’s a walk with a purpose. Choose a colour—any colour—and head outside. It could be your backyard, a park, a sidewalk… anywhere that feels safe. As you walk, look for that colour in nature.

If you choose green, you might see leaves, grass, or moss. If you choose yellow, maybe you’ll spot flowers, sunlight, or a dandelion. You can take photos, jot things down, or simply notice what you see.

This isn’t about walking far or fast. It’s about slowing down, noticing, and reconnecting.

Why does this help?
Grief can make us feel disconnected—from ourselves, from others, even from the world around us. Nature doesn’t ask questions or expect you to feel a certain way. It just is—calm, messy, quiet, alive.

Looking for one colour helps focus your attention and brings you back to the present moment. It’s a simple way to find a little calm when everything feels too big.

How to try a Nature Colour Walk:

1. Go outside—wherever feels right.
2. Pick a colour.
3. Walk slowly and look for that colour in nature.
4. Pay attention to what you see, hear, and feel.
5. If you’d like, take photos or write down what stands out.
6. When you’re done, take a moment to reflect.

Want to think about it more? Try asking yourself:

• What colour did I choose, and why?
• Did anything I saw remind me of the person who died?
• How did I feel before and after the walk?
• Was it easy or hard to focus?

You don’t have to share your answers with anyone—but if you want to, we’d love to hear about your experience.

Grief can show up in many ways. It’s okay if some days feel impossible. A short walk in nature won’t fix everything, but it can give you a quiet moment of peace—and you deserve that.

You’re not alone.

Our Upopolis Child Life Specialists help support youth through big changes-and the end of the school year is one of them. Whether you’re moving up a grade, switching schools, starting a new treatment, graduating, or heading into summer break, it’s normal to feel a mix of emotions. 

Here are some tips to take care of yourself during this transition:

Talk About Your Feelings

Feeling excited and nervous? That’s okay! Change brings up all kinds of emotions. Talking to someone you trust; a parent, teacher, or friend- can help you feel calmer and more prepared.

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 Look Back & Celebrate the School Year You’ve done a lot this school year- even if it didn’t always feel easy. Before jumping into what’s next, take a moment to notice how far you’ve come.

Try one of these:

• Capture Memories: Take photos or write down your favorite moments or accomplishments on slips of paper.

• Top 3 List: What were your 3 favorite memories? 3 things you’re proud of? 3 things you learned?

• Notes: Write a quick thank-you or goodbye note to a teacher, friend, or even yourself!

• Year-in-Review: Draw a picture or make a playlist that captures your year’s vibe.

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 Get Ready for What’s Ahead

Big changes coming up? Sometimes new changes like a new school or schedule can feel overwhelming, but a little prep goes a long way.

New school? New schedule?  Ask questions, take a tour, or talk to someone who’s been there. Knowing what to expect can help to feel safe and prepared.

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 Keep a Bit of Routine

Summer should be fun and relaxing, but your mind still likes some structure! Keep a loose routine for sleep, meals, and fun so your days feel balanced.

 Even small habits—like a morning walk, journaling, or set mealtimes—can help your days feel more predictable and calm.

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 Remember: You’re Growing

Transitions are not always easy, but each step you’ve taken shows how much you’ve grown. You’ve already overcome so much, and you’re ready for what’s next. Be proud of yourself, and don’t hesitate to ask for support whenever you need it — you’re not alone on this journey.